BELLEVILLE, IL (KTVI) – Let us introduce you to a family facing the genetic disorder Battens Disease. Chrissy Johnson’s son Boston was born healthy but started getting really sick when he was a toddler. Boston’s family is now helping him fight for his life.
They share their story of symptoms, diagnosis and prognosis.
You can join Boston and his family and friends for a benefit to help defray the costs of his medical care, and to raise awareness of Battens Disease.
Boston’s Battle at Fischer’s Restaurant
2100 W. Main Street
Belleville, IL 62226
$20 advance/$25 door
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