Boston’s Battle Fundraiser

BELLEVILLE, IL (KTVI) - Let us introduce you to a family facing the genetic disorder Battens Disease. Chrissy Johnson’s son Boston was born healthy but started getting really sick when he was a toddler. Boston’s family is now helping him fight for his life.

They share their story of symptoms, diagnosis and prognosis.

You can join Boston and his family and friends for a benefit to help defray the costs of his medical care, and to raise awareness of Battens Disease.

Boston’s Battle at Fischer’s Restaurant
August 26
Fischer’s Restaurant
2100 W. Main Street
Belleville, IL 62226
$20 advance/$25 door

Find out more: