ST. CHARLES, MO. (KTVI) - Vivian Lemire has Autosomal Recessive Polycystic Kidney Disease.
It is a rare genetic disease that has left the 21-month-old in need of a kidney transplant.
Her parents are trying to raise money to help pay for the transplant.
“She is on dialysis now, but will need a transplant soon,” her mother Cara Lemire said.
The family already lost one child, Renee, to Autosomal Recessive Polycystic Kidney Disease.
“My husband and I both carry the gene and after Renee we knew there was a chance Vivian would be born with the disease,” Lemire said.
Renee died just a few days after being born.
“You go to the hospital thinking you’re going to come home with a baby and then you don’t,” Lemire said. “I can't imagine losing Vivian.”
The family is having a fundraiser on Oct. 13 at Hope Lutheran Church in St. Charles. It starts at 7 p.m.
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