(KTVI)-On October 18, Noah Bryant, a six year old boy from Edwardsville, IL, passed away after a battle with HLH, a rare immunodeficiency disorder. Friends and family are now holding a fundraising 5K and walk on Dec. 1 to remember little Noah and to help his family.
Hemophagocytic lyphohistiocytosis, or HLH, is a rare but potentially fatal disease in which the immune system produces too many activated immune cells called T cells, natural killer cells, B cells, and macrophages. This over-activation of the immune system causes fever and damages the liver and spleen.
Noah spent his last months in a Cincinnati, OH hospital getting specialized treatment, including a bone marrow transplant. Parents, Jim and Jenny, brother Eli, all went with him. That’s where the family learning that another child is on the way, a son, who has 2 of the prominent markers to be born with HLH as well.
Jim is a Navy Seabee, who will be deployed again at the end of the year.
The fundraiser will consist of a 5K run/walk, bake sale, silent auction, face painting, raffle items and a balloon release in Noah’s honor.
More information: Noah’s Journey on Facebook
Saturday, December 1, 2012
Dupo, IL High School Track
$25 to Run/Walk; $15 for a T-Shirt
Checks can be made out to: 5K4NOAH