Boy faces unique challenge in dealing with summer heat

This is an archived article and the information in the article may be outdated. Please look at the time stamp on the story to see when it was last updated.

CREVE COEUR, MO (KTVI) - A Creve Coeur family is dealing with the sweltering summer heat in an unusual way. At 9-years-old, Nathan Glodeck is a typical 4th grader who loves to swim with his family. He also likes to plays the piano, Mine Craft and Pokémon. However, when it comes to managing the heat his story is unique. Nathan has a rare condition called hypohydrotic ectodermal dysplasias, a disorder that makes it impossible to sweat. Nathan was has lived with the disorder his entire life and knows when he's overheating.

"My whole body gets numb. My whole body starts to do an achy, stingy thing."said Nathan

Nathan's father Michael says the family always has a plan for the heat. They use misters, cooling towels, fans and the pool to keep cool

"His ears get red he'll get angry. He just gets too warm and starts to get tingling sensations in his limbs and it spreads from there. We always park in handicapped spots and close to buildings, we also pre-cool the car because it can be 20 to 30 degrees hotter than it is outside.” said Michael

According to the National Foundation for Ectodermal Dysplasias, there are 180 types of the genetic condition inhibits proteins in the body affecting the growth of hair, teeth and limbs.

Seven in every 10,000 babies are born with it every year.

"When he was young it was challenging to figure out when he was too hot or too cold has he’s gotten older its gotten easier for us. He's as smart as can be and he’s a great big brother has lots of interest and we just adore him." Michael said